I’m feeling hypsensitive these days. I was working in my office and tried to print something. This is a document that’s been on my computer for years and all I ever do is change the shipping address. For some reason, the document wouldn’t print properly. I got so upset about the misprint that I started to cry and couldn’t stop for several minutes. I really just needed to feel like I could count on something to go right for me today.
Dan and I finally completed the SUDC Family Survey over the weekend and I put it in the mail today. We finished the consent forms in April to allow the researchers to request Alexander’s medical information and it’s taken us this long to complete the survey. The survey wasn’t hard. It was just long and not something that could be completed in one sitting because of all the memories it brought up for both of us.
Remembering Alexander 