Every time I checked Facebook for the past few weeks, someone was posting about another event happening on May 3. Ordinarily, they’d be events I want to attend but not on Alexander’s birthday. I wished today could have been about the frenzy of planning for a birthday party. Instead, it was another intense day of missing my boy.
A few friends did send me a text or email to acknowledge Alexander’s birthday. I know everyone gets busy and I’m ever grateful for those who still remember.
We had a quiet family day. After picking up supplies at one of the local nurseries, we spent the day gardening (planting flowers, putting down fresh mulch, etc.).
Later in the day, we visited Alexander’s grave and released 8 balloons (7 in honor of his birthday and an additional one just because). Though I talk to Daniel about Alexander, he doesn’t yet understand why we go to the cemetery and on these especially tough days, I’m happy for Daniel’s innocence.
Preparing to release a balloon in Alexander’s memory
Daniel watching the balloons.
The last of 8 balloons released for Alexander.
I was doing ok this week until I started looking at some photos of Alexander last night. We have photos of Alexander all around the house which I see everyday so was very surprised at how suddenly the sadness overtook me. I guess after Daniel being so sick early in the week and today being the anniversary of Alexander’s passing, it was just too much for me. As I said to a friend today who is also grieving the loss of a loved one: The grief does overwhelm you when you least expect it. I’m not sure that ever goes away. You just learn to let your happiness and grief coexist because they’re both now a part of your life.
Poor Daniel was sitting next to me on the couch while I was looking at the photos and didn’t know what was wrong. Even though I talk to Daniel about his brother, he doesn’t understand just yet. Soon, I will have to figure out how to tell him about what happened to Alexander.
Alexander, December 2008
The day went ok. Daniel and I did some errands this morning. After he took his nap, we planned to go to the cemetery. Sadly, the cemetery visit didn’t happen. When we arrived, the gate was already locked. We planned to decorate the little tree at our family plot and release balloons. It won’t be the anniversary but we’ll do it tomorrow. We took Daniel to buy books and then out to an early dinner. It was a nice quiet day for our family.
I normally don’t post about Alexander’s birthday or anniversary on Facebook but felt the need to do so today. The comments from friends really helped to make this difficult day just a little lighter.
Today is December 17. Three days before December 20. Three days before the 5th anniversary of the most horrible day in my day. I think of Alexander all the time but this week is especially intense. We decided to celebrate Christmas this year. We went to a tree farm and got a tree (something we haven’t done since 2008). We decorated our house and participated in our neighborhood holiday house tour. We’ve always wanted to do the house tour and felt we’d finally come to an emotional place where we could do it. These were all big steps for us.
I thought I would feel some guilt like I was moving forward and leaving Alexander behind. Maybe I was distracted because I was so busy prepping for the house tour but I really enjoyed all these activities. I feel like I’ve come to a place where my sadness and happiness about this time of the year can co-exist. I will always miss Alexander and especially during Christmas but also feel I need to have Christmas for Daniel (Alexander’s younger brother).
Daniel has been really sick the past few days. He had a high fever on Friday evening which climbed to 105 yesterday morning. I tried to remain calm for Daniel’s sake but inside I was totally freaking. When he had the 104 and 105 degree fevers, all I could think about was what if he has a febrile seizure? Will that set us up to go down the same path as Alexander? Thankfully, Daniel’s pediatrician prescribed him some antibiotics and some other things for me to do. His temp is down to only 101 this morning and he’s starting to eat a little. I never want to see my child sick but especially not this week when my emotions are already so heightened.
I think I started to breathe and relax a little about something also happening to Daniel but this week has changed for me.
Summer is over and school has begun. All the t.v. commercials and talk of the first day of school didn’t bother me a couple of weeks ago. Even the first photos of friends sending their kids off to school that appeared on Facebook didn’t bother me. Now, it’s a little overwhelming. Alexander would have turned 6 this past May and should be heading to first grade this year with the rest of his friends.
I miss my sweet boy so much.
Today, we mark another “significant” day in our unending grief journey. Daniel is one day older than Alexander was when he died. It’s a day I’ve both dreaded coming and am grateful that it’s here. Daniel has been waking in the middle of the night/morning a lot lately, and when he screamed at 5am this morning, I was hoping he’d go back to sleep. No such luck. Yet, it was the best sound I’ve heard in a long while.
Before we head to the drive in tonight, we’re going to stop by the cemetery. With today’s impending milestone, I’ve been thinking about Alexander more than usual all week and really need to be there.
Even though we’ve only had one more day with Daniel than Alexander, I feel like we’re entering new territory. Just recently, I found myself thinking about 2nd birthday party ideas for Daniel and that scares me a little. It’s still hard to let myself believe what might be. I’m trying to have more hope that everything will be ok but some days it’s hard because I know how easily things can change.
Early this morning, the Angelcare monitor started beeping. This is the first time the alarm has sounded and I momentarily froze. I checked the screen and quickly figured out the problem was related to Daniel’s room being too cold not that he’d stopped moving. I breathed a huge sigh of relief. I couldn’t have handled it if it had been anything else especially today.
I’ve been sad about today’s upcoming anniversary for the last few weeks. I knew it was coming and there was nothing I could do about it. I tried to just live each day and busy myself with taking care of Daniel. I thought I was doing ok until this morning. Then, all of a sudden, it hit me like a ton of bricks. My baby boy isn’t here and I just had to stop and cry for a while.
Dan, Daniel and I had a “relaxed” day. After Daniel’s morning nap, we ran a few errands and then went to the cemetery to leave a small evergreen for Alexander. This is the first time we’ve taken a tree for the holidays. I forgot the decorations so we’ll need to go back over the weekend to add them to the tree.
I’m sad for myself that Alexander isn’t here. I’m also very sad that my two boys will never get a chance to meet and do the things that brothers do. I talk to Daniel about Alexander often and will continue to do as he gets older but it’s just not the same.
I’m grateful to the many friends who texted, emailed and posted on Facebook about Alexander today. Of course, he’s special to me and it was nice to know he touched so many others.
I received a card from our local The Compassionate Friends chapter this week and it had a quote on it that I think I want to frame:
“It has been said, ‘time heals all wounds.’ I do not agree. The wounds remain. In time, the mind, protecting its sanity, covers them with scar tissue and the pain lessens. But it is never gone.” – Rose Kennedy
I think she’s right. The pain is never gone. It’s just becomes manageable.
We should be celebrating Alexander’s 5th birthday today.
Instead of eating cake and ice cream, I’m spending part of the day working on planning for the 3rd Annual Alexander’s Run.
Though he doesn’t understand me, I’ll talk to Daniel about his older brother and how much I wish they had been able to grow up together.
Instead of Alexander blowing out 5 candles on his cake, we’ll go to the cemetery later and release 5 balloons.
When I looked into Alexander’s eyes 5 years ago at the hospital, this isn’t how I thought I’d spend his birthdays. I’m glad I have happy memories to keep me going on these tough days.
The recent SUDC quilt was unveiled at the 10th anniversary event on April 14. I’e never done a quilt square until now. My square isn’t very creative but it is from the heart. I’m glad I was able to include Alexander along with the other children.
Dan, Daniel and I went to dinner at the club on Wednesday evening. As we were leaving, we stopped to say hi to friends who were seated at the bar. Along with our friends, there was another couple siting nearby who commented on Daniel. Their first grandchild is the same age.
After our friends left to be seated for dinner, we continued to talk to the couple sitting at the bar. Of course, the inevitable question comes up about is this our first. I quickly no. The wife pressed and I finally told her about Alexander. To my surprise, she responded that she understand my pain because they had lost a daughter to SIDS many years before. She also surprised me by thanking me for telling her about Alexander. The wife and I chatted a while more about our children. It was nice to have this conversation. I guess you really just never know what another person has experienced in life.
At the SUDC fundraiser, I did tell a couple of parents that I try to tell our story whenever I can. It’s one way to keep talking our sweet Alexander but also part of raising awareness about SUDC. Even though, presently, there is no way to prevent SUDC, I feel I do need to tell people about it.
Dan and I attended the SUDC program’s 10th anniversary event in NY this past Saturday. On the one hand, it was wonderful to meet some of the parents I’ve only known through the online support groups. On the other hand, the reason that brought us all together made me sad. I don’t know what we would have done if the SUDC program hadn’t existed when we needed it.
Despite being surrounded by family and friends, I felt so alone during those first days after Alexander passed. Time has helped decrease the intensity of my pain but I still miss Alexander so much.
The SUDC Program – Who We Are