Review has begun

I got word yesterday from the SUDC study that the active review of Alexander’s case has finally begun.  The active review has three parts and will take them almost a year to complete.

Here’s the review process:

Part I—the abstracting of Alexander’s medical history; this takes on average 2-3 months.

Part II—the neuropathology review; this takes an average of 3-5 months.

Part III—Dr. Krous’ comprehensive review and diagnosis follows and is generally completed within 1-2 months

Even though we’re participating in the study, I know it’s likely that we’ll never really know happened but I have to do everything I can to find answers.

2 responses to “Review has begun

  1. I did not realize that there is such an in-depth study that occurs after the unexplained death of a child. I pray you find answers!

  2. Hi Michelle, I would certainly want all the answers I could find as well. Please keep us posted on outcome if you can.

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