I got word yesterday from the SUDC study that the active review of Alexander’s case has finally begun. The active review has three parts and will take them almost a year to complete.
Here’s the review process:
Part I—the abstracting of Alexander’s medical history; this takes on average 2-3 months.
Part II—the neuropathology review; this takes an average of 3-5 months.
Part III—Dr. Krous’ comprehensive review and diagnosis follows and is generally completed within 1-2 months
Even though we’re participating in the study, I know it’s likely that we’ll never really know happened but I have to do everything I can to find answers.