Starting the SUDC study

Dan and I have made the first steps toward participating in the SUDC study.  We’ve completed the consent forms and I put them in the mail today.  The next step is to complete our family history surveys.  Completing those surveys is going to take some time because they ask for a lot of information.  Hopefully, with our participation and that of the other families in the study, we’ll find some answers to SUDC someday.

I’m really sad for us but I hope no other parent has to endure the pain we’re experiencing by Alexander’s loss.

As if the loss of Alexander hasn’t been hard enough on me, I had to cut myself off from a relative this week.  This break has been coming for a long while and the person just pushed me over the edge on Thursday evening.  Sometimes, I can’t believe the things people do.

2 responses to “Starting the SUDC study

  1. I understand having to cut off relatives and how painful that can be but at the same time having to survive this grief is all that we can bare. I personally have let go of many relationships with friends during this time after Ansley’s death because some fell away quickly after this unexplained death. The hardest has been my father, I have no more energy for him or my stepmother and their callousness, their insensitivity, and utter disregard for my feelings and how much I miss her!

  2. Michelle and Dan- I fully support your participation in the study- hopefully you will have some answers and be able to have some semblance of closure, though of course it will never bring Alexander back. I also think if you can prevent this pain for any other parents to experience, you will have done a truly wonderful, selfless thing.

    I am sorry to hear about your experience with your relative Michelle- sometimes I can’t believe things people do either. But its important you focus on taking care of yourself and your own needs.

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